Categories
biologic chronic illness Cimzia crohn's disease health pregnancy

Pregnancy, childbirth, and the whole shebang

(Yep, it’s been over three months since I blogged so let me apologize for that first and foremost. New year, new resolution — we’ll see how I do!)

The big news: at the end of November, I gave birth to a baby boy, Kai. Throughout the 10-month stretch, I remained pretty quiet about my pregnancy in terms of my illnesses. As you can imagine, we — my husband and I — were cautiously optimistic going into everything and only made the decision to try for a baby after many tests and gaining the consent of many doctors. Knock on wood, everything went incredibly well. Kai was born at full term weighing 8 lbs 3 oz, 22.75 inches (very tall!) and his Apgar score was near perfect.

Over the next few months of maternity leave, it is my hope to reflect upon the experience of going through pregnancy and childbirth being “high-risk” and maintaining my health while remaining on Cimzia. For any of you wondering, Cimzia is a class B drug (in the same category as Benadryl and Pepcid).

I’m also involved in a study with Cimzia + pregnancy and have already received some of the results from the first round of tests. Here’s the initial great news and I’ll share more as I receive it: a blood draw of the baby’s blood just after birth (literally, minutes after birth), as well as the cord blood, showed no traces of Cimzia. My own blood showed very low traces of the drug, but I wasn’t so concerned with my own draw as you can imagine.

When making the decision to remain on Cimzia, I’d been told that because of the size of the molecules in the drug, it would not cross the placenta. It wasn’t until I was informed of the results of my own tests that I truly believed it. To say I was relieved would be the understatement of the century.

As always, it’s important to know that I’m not a doctor by any stretch of the imagination. I am however a very resourceful and proactive patient. During my pregnancy I was constantly searching for examples of women who’d had babies while on Cimzia and did not uncover much. So if you’ve found this post because you too are searching for answers, please feel free to reach out to me directly and I can hopefully point you in the right direction!

Happy new year Chronic Stylers and stay tuned.

Categories
biologic TNF-Alpha

Humira, I hardly knew ya.

Plagued with allergic reactions and a grand finale of skin cancer, yesterday marked the beginning of my final adventure into the land of TNF-Alpha inhibitors. Good bye Remicade, adios Humira, hello Cimzia. And if Cimzia doesn’t like me — or vice-versa — I’m out, and the world of anti-TNF therapy is not for me. After all what doesn’t kill you — almost killed you! (Or me, in this case. Literally, like I almost suffocated in my own hives.* Yikes.)

Enough pessimism though, I have read and heard great things about Cimzia, and must say that as a designer I am almost more excited about the user experience and packaging than the actual drug. Speaking of which, there is a great review about it and the history of injection devices on Core77.

Fingers crossed that this will work. So far, so good. I’m ready to say good bye to the prednisone any day now…

*And now the ER bills are slowly killing me.