Chronic Style

A blog about living stylishly with a few chronic illnesses.

beer_for_breakfast_1

Amongst my top five least favorite things that people often say to me is this statement (or something similar to it): “You can eat that? My friend with Crohn’s can’t eat/drink that.” It makes me mad just thinking about it and is, in my mind, akin to asking someone who cannot eat shellfish why other humans can eat shellfish. Perhaps this is why I love this piece by David Obuchowski so much.

David is a touring musician with a severe case of Crohn’s disease — and he loves craft beer…a lot. Check out his piece on Drunkspin’s The Concourse. Lots to learn about beer here, which I for one, love.

Image by Sam Woolley.

Read More

I was incredibly inspired by my colleague Jose Colucci‘s daughter, Lina Colucci, and her TEDx Brussels performance/talk about hacking medicine. As someone who has worn painful pointe shoes (and still have the awful feet to prove it), taken multiple medicines, and used a breast pump, I found quite a lot to empathize with here. I know you will too.

Read More

(Yep, it’s been over three months since I blogged so let me apologize for that first and foremost. New year, new resolution — we’ll see how I do!)

The big news: at the end of November, I gave birth to a baby boy, Kai. Throughout the 10-month stretch, I remained pretty quiet about my pregnancy in terms of my illnesses. As you can imagine, we — my husband and I — were cautiously optimistic going into everything and only made the decision to try for a baby after many tests and gaining the consent of many doctors. Knock on wood, everything went incredibly well. Kai was born at full term weighing 8 lbs 3 oz, 22.75 inches (very tall!) and his Apgar score was near perfect.

Over the next few months of maternity leave, it is my hope to reflect upon the experience of going through pregnancy and childbirth being “high-risk” and maintaining my health while remaining on Cimzia. For any of you wondering, Cimzia is a class B drug (in the same category as Benadryl and Pepcid).

I’m also involved in a study with Cimzia + pregnancy and have already received some of the results from the first round of tests. Here’s the initial great news and I’ll share more as I receive it: a blood draw of the baby’s blood just after birth (literally, minutes after birth), as well as the cord blood, showed no traces of Cimzia. My own blood showed very low traces of the drug, but I wasn’t so concerned with my own draw as you can imagine.

When making the decision to remain on Cimzia, I’d been told that because of the size of the molecules in the drug, it would not cross the placenta. It wasn’t until I was informed of the results of my own tests that I truly believed it. To say I was relieved would be the understatement of the century.

As always, it’s important to know that I’m not a doctor by any stretch of the imagination. I am however a very resourceful and proactive patient. During my pregnancy I was constantly searching for examples of women who’d had babies while on Cimzia and did not uncover much. So if you’ve found this post because you too are searching for answers, please feel free to reach out to me directly and I can hopefully point you in the right direction!

Happy new year Chronic Stylers and stay tuned.

Read More